Making Exceptions

Normally, I don’t go out of my way for cancer related charities. It’s not that I’m a Scrooge or anything, quite the contrary. The reason, aside from being a college student with no income, is that I’ve spent more than my fair share of time in the hospital myself, especially as a child. For a time I was even enrolled in a hospital school. 

Here’s the thing to understand about hospital school: only a small fraction of children in the hospital end up there. Most children don’t spend long enough to need it. Your average broken bone, tonsillectomy, or even appendicitis is only a few days in the hospital. Moreover, it doesn’t apply to the really bad cases either. Obviously a kid in a coma or similar isn’t going to be in classes, and someone who’s terminal is going to have other priorities. So in practice, you get a narrow overlap of kids who are sick enough to need to stay in the hospital, but healthy enough that education is a going concern and a worthwhile investment. 

Now, having a school where everyone is sick, most kids are disabled, and the cast rotates frequently enough (as kids either get better or worse) to have everyone be the new kid, makes for a comparatively egalitarian school environment. Indeed it was the only school I was ever in without any evidence of bullying. But despite this, hospital school is no utopia. Human nature is what it is, and so there were inevitably cliques. The kids who were longtime students, who had the same abilities or symptoms and shared the same diagnoses, and were on the same ward often formed their own cliques. Naturally, the largest and most influential clique was that of those students who had the most common diagnosis, who alll lived on the same specialty ward, and who, by the nature of their disease, got the most public sympathy, leading to charitable donations and better toys for them.
Yes, that’s right. In the hospital school I went to, the cool kids were the oncology patients. 

Obviously, I don’t envy them, even if I might’ve wanted to have been given a diagnosis that I could explain to other people, or gotten some of the perks of the countless charities devoted to childhood cancer. For what it’s worth, they were all very nice people. As cool kids go, they were benevolent overlords. I never had anything against them as individuals, just against the fact that society seemed to recognize them, who were in effectively in the same position as me, because they had a particular diagnosis and I didn’t. They had a certain social privilege, that cancer was everyone’s enemy, whereas the doctors couldn’t even name what it was that I had. 

There’s a bit more nuance here, but I’m writing this on a schedule, and that’s the short version. As a result, when it comes to organizations that provide resources specific to cancer, I tend to prioritize my contributions elsewhere. With the knowledge that cancer causes are usually fairly well supported and funded, all else equal I will usually donate my money, time, and energy to other causes. I don’t oppose such efforts, but it takes something exceptional to get me on side. 

And the reason I bring all this up is because we’ve reached one of my exceptions. This Star Won’t Go Out is hosting its big indiegogo fundraiser. I like TSWGO. Their story warms my old grinch heart. And more importantly, I like their angle. Because as much as they’re about sticking it to cancer, and helping kids do so, they are also focused on promoting kindness and good. Even though they’re a cancer charity, their projects benefit people besides just those who have a cancer diagnosis. After all, it has benefited me.

Their community outreach and Project Lovely grants have kept a strong focus on making life better for those who need it, regardless of diagnosis. These may not be the most economically efficient means of converting dollars into comfort, but it is an excellent way of spreading joy, goodwill, love, and compassion. Full disclosure here: I applied for such a grant two years ago for a project based on my own experiences in hospital so long ago. I didn’t make the cut, but my interactions with them made it clear that we both cared about essentially the same things. The projects they eventually did fund have done good in the world, and I support them wholeheartedly.

So if you, like me, are a charitable person, but shy away from donating to big causes, join me on supporting This Star Won’t Go Out’s current fundraiser. They do good with limited resources, and seek to change the world for the better, not just for their tribe, but for everyone.

Esther Day

About a year ago now, on October 10th to be exact, I received a gift from a mother on behalf of her dead daughter. Perhaps the peculiar power of that sentence explains why this small lime-green wristband, valued by market forces at approximately five dollars, has quickly become one of the most thought-about objects I own.

Calling it a personal gift might be a bit much. I never met the daughter, Esther, in life, and had only had peripheral contact with the mother, Lori, twice before; once seeing her onstage at a conference, and once online, and never properly meeting in a way that we could be called acquainted. I received this gift because I happened to heed a call for a Nerdfighter meetup. Everyone there who didn’t already own a wristband was given one.

Still, I wouldn’t call it a giveaway; not in the sense of the mass, commercial connotations of the word. It was a gift given to me, and the others who received identical gifts, because I was, by virtue of being there at the time and being enthusiastic about it, was part of the Nerdfighter community, which Esther was a part of and had found immense joy in. Because Nerdfighters that show up to gatherings should have Esther’s wristbands as a matter of course. Because I needed one, and it would be rude to make a friend pay for something they needed from you.

Perhaps you can start to grasp why this small action and token have given me so much cause for reflection, especially given that I consider wristbands to have a special meaning to them. Clearly this one is a token of sorts. But of what? I wouldn’t call it a reward; the manner in which they were given doesn’t bespeak a reward, and I certainly haven’t done anything to merit this specific one. As a symbol of fraternity and comradeship? Possibly, but though I may believe that Esther and I would have been friends had I known her, we weren’t, and it’s a stretch to say that I’m friends with someone I never knew existed while they were alive.

I have gotten a few hints. The first comes from John Green’s remarks regarding Esther, both in his videos, and in his speech at Nerdcon: Nerdfighteria. He talks about her, at least partially, in the present tense. This is echoed in the literature of This Star Won’t Go Out, the foundation set up in her honor which manufactures and sells the bracelets in question. Esther may be gone, but the impact she had on their lives during hers continues to reverberate.

This talk is familiar enough to me. It comes up at the conferences I attend; how we have an impact on each other, on others, and in terms of advocacy, on policy and the world. The wristband pulls at those same strings, and so feels sentimental beyond the story behind it. It reminds me of stories I’ve heard a hundred times before, from tearful eulogies to triumphant speeches, in soliloquy, and in song. It reminds me of the stanza from In Flanders Fields that always stops me in my tracks.

Take up your quarrel with the foe
To you from failing hands we throw
The torch: be yours to hold it high
If ye break faith with us who die
We shall not sleep, though poppies grow
In Flanders’ fields, in Flanders’s fields

I am always drawn to this stanza, particularly the second and third lines. Because yes, it’s a sad song, but those two lines hint at something more. The torch isn’t lost; on the contrary, it continues to be held high. There is tragedy, but there is also a chance for something like redemption. Not revenge; it’s the wrong kind of song to be a proper up and at ‘em fighting song. Rather, a chance at making some good come out of the situation. Yes, this group failed to finish what it started, but all is not lost so long as someone picks up the torch. It’s a sad song, but it also has hope in it.

So the torch, or in this case, the wristband, is mine. Now what? How do I hold it high in this situation? More crucially, how can I make sure I don’t break faith? How do I ensure that this star doesn’t go out? If I had ever met Esther, or even known her online when she was alive, instead of only in past tense, I might know how to do that. And from what I’ve been able to gather, she made it clear that she had no desire to be remembered only in past tense (hence my very careful wording, and focus only on my own perspective).

Luckily for me, I once again have several hints. I know the causes she championed, and those which others close to her have championed by her inspiration. Many of them mirror the same ideals I hold. Indeed, some months after that day in October, I received some feedback on a pitch I had made to This Star Won’t Go Out regarding a Project Lovely idea, essentially telling me that while my idea wasn’t quite what they were looking for at that moment, that my head and heart were in the right place. The message seems to be that I am expected to carry the torch / keep the Star shining simply by continuing to have a positive impact, or in Nerdfighter parlance, by not forgetting to be awesome, and decreasing worldsuck, through whatever means seem best to me, at my own discretion.

The wristband, then, is a symbol of that mission. It is a good mission, and a mission I was probably going to try and accomplish even without a wristband, which is probably why it seemed so natural that I should get one. Perhaps I shan’t accomplish it in my time, in which case it shall be my turn to throw the torch from my failing hands, so that others in turn shall wear wristbands. There is a comforting poetry to this.

All of this has a special relevance today, since, for those who haven’t figured it out, today, August 3rd, is Esther Day. When John proposed to make her birthday a holiday in Nerdfighteria, she responded that she wanted it to be about love and family. This has been interpreted as being a sort of Valentine’s Day for non-romantic love. In particular, the tradition is to tell others in so many words that you love them.

This is difficult for me, for two reasons. First, the obvious: I’m a guy, and an introvert at that. Guys are only ever expected to voice love towards others under a very narrow range of circumstances. So I’m squeamish when it comes to the L word. And secondly, I have an aversion to dealing in absolutes and making commitments I can’t guarantee I’ll be able to keep absolutely. This is learned behavior, ingrained by years of having medical issues wreck plans, and uncompromising administrators hold me to the letter of my commitments despite extenuating circumstances making those promises all but impossible.

Even now, typing words out, I find myself backpedaling, tweaking phrases to avoid putting things plainly and opening myself up. But I’m going to suck it up. Not for Esther, because I never met her, and it isn’t fair for me to do things in her memory since I don’t actually have a memory of her. But for Esther Day. For the things she set in motion. For the trust that the people she trusted put in me.

I love my brother, despite bitter arguments. I love my parents, who enable me to live probably more than my doctors. I love my friends, both old and new. I won’t name them, despite convention, for their own privacy, but you know who you are, and you have open license to confront me and demand to hear the words personally over the coming days. I love the Nerdfighters and Tuatarians I have met, both in real life and online, who proved that whether or not the world at large is cruel, there are pockets of kindness all over. I love my disabled comrades, who give me perspective and inspiration. I love my doctors and nurses, who keep me alive, and indulge me when I value things above following medical advice precisely as given.

I know I’m supposed to say, now that I’ve said it, it wasn’t so hard. But, actually, no, that was terrifying, for all the reasons I outlined above, and it’s still terrifying to know I’ve said it, let alone to leave it up. But I’m going to leave it up. Because it’s the thing to do. Because even if others don’t follow my example as is the tacit understanding, having a world with more love and appreciation in it, even a small amount, is a good thing.

Happy Esther Day.

A Book Review: Turtles All The Way Down

Recently I received a free signed copy of Turtles All The Way Down, by John Green. Well, actually, it was two weeks ago. Also actually I got more than one copy, but the second copy, which I received before I got my hands on the first copy because I got it in person on launch day, was part of the goodie bag for the book tour event that I went to. And while the book wasn’t something I purchased per se as a discrete product, I did pay for the ticket to the event. Or rather, my family paid, because this was a family outing, and so everyone came and got signed books.

All that is to say that there is now an appreciable stack of signed Turtles All The Way Down books sitting, conspicuously arranged in a sort of spiral stack (Turtles All The Way Down, all the way down), on our countertop, and that these books were acquired, depending on how you average the cost per book and whether you factor in the intangible value of the book tour event, either for free, at a very inflated price, or somewhere in between.

I was told when I was promised my free copy and asked for a shipping address that this was meant as a token. Not payment, nor tribute to curry favor, but a gift. Because I was part of a community, and had been following and involved in the book’s development, even when neither I nor anyone else knew that John was working on a book, and my participation was worth something, and that this signed copy was a token of that meaning.

Maybe I just have trouble accepting compliments and credit. It wouldn’t be the first time that this has come up. Even so, there is a sort of convention whereby if you are set a free copy of a book by an author or their publishing staff, that you will endeavor to review it (preferably with glowing praise). And while I am generally not a stickler for social convention, this one is close enough to the thing that I was going to do anyways. So here goes.

One more note before I begin: there is also a convention of referring to authors by their last name when reviewing them. I’m not going to do that for a couple of reasons. First, because John Green has a brother, Hank Green, who also writes. Second, because, as noted, receiving this book is a personal token of sorts. And while I may not be strictly on a first name basis with John Green, insofar as I do know him and have had limited contact with him, he has always been John to me. To call him otherwise would feel strange and insincere.

People with only a passing familiarity with John and his work might be surprised that I am such a staunch fan. After all, his works, and especially his previous work, The Fault In Our Stars, are often pigeonholed as stereotypical “teen-girl gushy romance novels”. Like in all stereotypes, there are some elements of truth in this, especially if one is of the inclination to consign anything containing teenage girl protagonists and a romantic arc to a lesser status.

Nevertheless I maintain that TFIOS also manages to effectively introduce several hard-hitting themes and questions. It tackles, among other things, chronic illness in a way that is, if not always perfectly realistic in the strictest academic sense, then at least realistically personal. That is to say, TFIOS tells an accurate first-person story, even if telling the story from the perspective of the protagonist makes it somewhat dubiously personal from other perspectives.

You will notice that while I talk about John’s use of themes and ideas and other English class topics, I have barely mentioned the actual plot, characters, and related. This is, at least in my interpretation, an important distinction and recurring theme. John is decent enough at plot and characters and all those other things. But this is only one element of writing, and in John’s case, I will submit, not the main event. Where John excels is at integrating themes, questions, ideas, and concepts into a digestible and empathetic narrative. And Turtles All The Way Down is John doing this at his best.

In TATWD, John discusses important questions about mental health, chronic pain, the nature of love and friendship, inequality, loss, privilege, and the philosophy of consciousness, all bound up in a nice YA novel.

The parallel I keep coming back to is George Orwell’s work. Most likely, if you’re reading, say, 1984, you’re not doing so to hear about Winston and Julia’s thrilling romantic relationship, nor to see how Winston climbs the workplace ladder at the Ministry of Truth. You’re reading to have the big ideas unpacked for you and presented in a way that you can grapple with. You’re exploring the world, and Winston just happens to be your vessel for doing so.

Sure, you could skip Animal Farm in school, and get everything you’d need to know from skimming a history textbook on the Soviet Union. But reading the story version is probably going to make it easier to understand and digest. Simply hearing that a bunch of people were shot a long time ago in a country far away, doesn’t click in the human mind the same way reading about animals you’ve come to love turn on each other does.

Similarly, you could skip Turtles All The Way Down, and go over the Wikipedia pages for OCD, Anxiety, and the philosophy of consciousness. But in addition to missing the story aspect (which is good, despite my maintaining that it takes a backseat), it’s probably not going to have the same hold on you. Humans are first-person creatures, and having something framed as a first person view is immensely powerful.

In conclusion, I think Turtles All The Way Down is a very good, very powerful book. It’s not perfect by a long shot, and I waver on whether I like it better or worse than TFIOS, which has long contended for my favorite book I have yet read. It isn’t exactly an apples to apples comparison, which will come as good news to those who felt TFIOS struck too close to the teen-girl romance stereotype. Even so, my signed copy of TATWD has earned its place in my collection next to my beloved signed copy of TFIOS, which is among the highest honors I can bestow.

A Hodgepodge Post

This post is a bit of a hodgepodge hot mess, because after three days of intense writers’ block, I realized at 10:00pm, that there were a number of things that, in fact, I really did need to address today, and that being timely in this case was more important than being perfectly organized in presentation.

First, Happy Esther Day. For those not well versed on internet age holidays, Esther Day, August 3rd, so chosen by the late Esther Earl (who one may know as the dedicatee of and partial inspiration for the book The Fault In Our Stars), is a day on which to recognize all the people one loves in a non-romantic way. This includes family, but also friends, teachers, mentors, doctors, and the like; basically it is a day to recognize all important relationships not covered by Valentine’s Day.

I certainly have my work cut out for me, given that I have received a great deal of love and compassion throughout my life, and especially during my darker hours. In fact, it would not be an exaggeration to say that on several occasions, I would not have survived but for the love of those around me.

Of course, it’s been oft-noted that, particularly in our western culture, this holiday creates all manner of awkward moments, especially where it involves gender. A man is expected not to talk at great length about his feelings in general, and trying to tell one of the opposite gender that one loves the other either creates all sort of unhelpful ambiguity from a romantic perspective, or, if clarified, opens up a whole can of worms involving relationship stereotypes that no one, least of all a socially awkward writer like myself, wants to touch with a thirty nine and a half foot pole. So I won’t.

I do still want to participate in Esther Day, as uncomfortable as the execution makes me, because I believe in its message, and I believe in the legacy that Esther Earl left us. So, to people who read this, and participate in this blog by enjoying it, especially those who have gotten in touch specifically to say so, know this; to those of you who I have had the pleasure of meeting in person, and to those who I’ve never met but by proxy: I love you. You are an important part of my life, and the value you (hopefully) get from being here adds value to my life.

In tangentially related news…

Earlier this week this blog passed an important milestone: We witnessed the first crisis that required me to summon technical support. I had known that this day would eventually come, though I did not expect it so soon, nor to happen the way it did.

The proximal cause of this minor disaster was apparently a fault in an outdated third-party plugin I had foolishly installed and activated some six weeks ago, because it promised to enable certain features which would have made the rollout of a few of my ongoing projects for this place easier and cleaner. In my defense, the reviews prior to 2012, when the code author apparently abandoned the plugin, were all positive, and the ones after were scarce enough that I reckoned the chances of such a problem occurring to me were acceptably low.

Also, for the record, when I cautiously activated the plugin some six weeks ago during a time of day when visitors are relatively few and far between, it did seem to work fine. Indeed, it did work perfectly fine, right up until Monday, when it suddenly didn’t. Exactly what caused the crash to happen precisely then and not earlier (or never) wasn’t explained to me, presumably because it involves far greater in depth understanding of the inner workings of the internet than I am able to parse at this time.

The distal cause of this whole affair is that, with computers as with many aspects of my life, I am just savvy enough to get myself into trouble, without having the education nor the training to get myself out of it. This is a recurring theme in my life, to a point where it has become a default comment by teachers on my report cards. Unfortunately, being aware of this phenomenon does little to help me avoid it. Which is to say, I expect that similar server problems for related issues are probably also in the future, at least until such time as I actually get around to taking courses in coding, or find a way to hire someone to write code for me.

On the subject of milestones and absurdly optimistic plans: after much waffling back and forth, culminating in an outright dare from my close friends, I launched an official patreon page for this blog. Patreon, for those not well acquainted with the evolving economics of online content creation, is a service which allows creators (such as myself) to accept monthly contributions from supporters. I have added a new page to the sidebar explaining this in more detail.

I do not expect that I shall make a living off this. In point of fact, I will be pleasantly surprised if the site hosting pays for itself. I am mostly setting this up now so that it exists in the future on the off chance that some future post of mine is mentioned somewhere prominent, attracting overnight popularity. Also, I like having a claim, however tenuous, to being a professional writer like Shakespeare or Machiavelli.

Neither of these announcements changes anything substantial on this website. Everything will continue to be published on the same (non-)schedule, and will continue to be publicly accessible as before. Think of the Patreon page like a tip jar; if you like my stuff and want to indulge me, you can, but you’re under no obligation.

There is one thing that will be changing soon. I intend to begin publishing some of my fictional works in addition to my regular nonfiction commentary. Similar to the mindset behind my writing blog posts in the first place, this is partially at the behest of those close to me, and partially out of a Pascal’s Wager type logic that, even if only one person enjoys what I publish, with no real downside to publishing, that in itself makes the utilitarian calculation worth it.

Though I don’t have a planned release date or schedule for this venture, I want to put it out as something I’m planning to move forward with, both in order to nail my colors to the mast to motivate myself, and also to help contextualize the Patreon launch.

The first fictional venture will be a serial story, which is the kind of venture that having a Patreon page already set up is useful for, since serial stories can be discovered partway through and gain mass support overnight more so than blogs usually do. Again, I don’t expect fame and fortune to follow my first venture into serial fiction. But I am willing to leave the door open for them going forward.

Pyrrhic Pizza and NerdCon: Nerdfighteria

I am never quite sure what to expect when going to NerdCon, and I am always surprised. The abundance of inside jokes and references is a high entry barrier to most. Even I, who am as well versed in the popular subculture as any, still find many things that are utterly incomprehensible to me.

There is also something distinctly paradoxical about NerdCon. Allow me to elaborate. The stated purpose of this event is a celebration of the community which has made its mark by combining the constructive spontaneity of the Internet with the mild antisocial tendencies of nerdiness. Contrast this with the strictly planned, hierarchically organized nature of commercial conventions. The idea of NerdCon is a celebration of and party for introverts and the socially inept. It is an oxymoron.

The brothers Green repeatedly stated that they believed that all they had done was to set a date and location, and that we, the attendees, had made it an event. Of course, they said this from atop a massive stage, with spotlights and cameras trained on them. It was strange, and thought provoking. Yet even more strange and thought provoking was seeing these people who I recognized from the internet and television in front of and around me, not as polished symbols, but as ordinary human beings.

The night of the concert series, I managed to meet up with some people whom I had previously chatted with online. It was strange to think that they, like myself, had come from faraway locales in order to attend this event, with minimal expectations; and had congregated together to meet each other people whom they only knew based on sparse text-based interactions. We were all immediately friends, even though none of us had ever met. I was continuously self-conscious of this, since I have never had much luck with friendship. It seemed, however, that all the little details which I had anxiously obsessed over were ultimately far less important than the simple fact that I was here. We were all here, together, all else be damned.

That evening before the concert, we elected to go out for food together. Our first choice was the Cheesecake Factory attached to the shopping center connected to the convention center. We were dismayed to discover that the wait was longer than we had until the concert. After we idled around for some moments, unsure of what to do next, a man who worked at the shopping center suggested an alternative. We set out, exiting the mall and heading out into the warm rain of downtown Boston towards where we had been assured that there would be restaurants with a far shorter wait time.

The first eatery we saw which would accommodate our group was a Pizzeria Uno’s. Four out of six of us were wearing our Pizza John t-shirts, we took this as a good omen, and went in. The wait to be seated, we were told, was no shorter than that of the Cheesecake Factory. At this point, two members of our group opted to split off and head back, reckoning that if a long wait was going to be necessary in any case, that they may as well go with their first choice, and also hoping that a smaller table might be more forthcoming. The larger portion of our group inquired as the possibility of a to go order.

We were told, at first, that it would be no more than fifteen minutes. After a brief conference, we elected for a single large cheese pizza. I gave my name, and we settled in for what we expected would be a short wait.

What was fascinating about this time estimate was that it seemed to remain constant regardless of our wait. That is to say, the estimate remained precisely fifteen minutes at the time we ordered, then ten minutes later, then twenty minutes after that. In the same way that a cure for all major illness has remained ten years away for the last four decades, it seemed that our Pizza would forever be fifteen minutes from completion.

At the forty minute mark, I began to despair. It wasn’t that I was exceptionally invested in the our pizza. I hadn’t yet paid for it, and so I had nothing truly to lose. There was the matter of my medically necessitated diet, which was fairly unambiguous on the fact that I would have to eat something, but this was still of secondary concern, even though it was probably the largest actual threat at the time.

Much as I enjoy traveling when I am able, my medical situation means that I am primarily a homebody. On an average day, I interact with the same four or five people (all family and tutors) and cover an area of approximately one hundred square meters. I write approximately four thousand words (average is about one thousand) and speak about three thousand (average is about sixteen thousand), owing mainly to a complete lack of social interaction. All of my friends are either away at university, or off working in the mythical “real world”, while I am left to contend with making the square peg of my medical situation fit into the round hole of my public high school’s graduation requirements.

Being acutely aware of my own isolation and corresponding utter lack of social experience, my greatest concern during the pizza debacle was that it might negatively color the impression of me of these people whom I so desperately wanted to call my friends. I feared that because I had been the person to actually place the order and put down my name, that this resulting fiasco would be my own shame. I feared, and indeed, expected, the immediate and harsh reproach of my comrades for this unmitigated failure to provide.

The scolding never came. The pizza eventually came. I paid at once, leaving a meager tip which I considered quite merciful given the extreme wait. I kept waiting the criticism which I fully expected. I waited to be torn into. Instead, the others tore into the pizza, anxiously attempting to scarf down an appropriate number of carbohydrates in the ten minutes remaining before the concert began. There were smiles all around. The pizza was good, if late. The only complaints were against the restaurant, not myself. The others were eager to give me cash for their share, and we made it to the concert on time.

At the concert series, Jon Cozart performed his piece “YouTube Culture” decrying the personality-cult nature of many modern online communities. The image of an internet celebrity as himself making bank on a song decrying such structures seemed both startlingly ironic, and completely apropos, given my earlier thoughts on the paradoxical nature of NerdCon itself.

There was a pervasive feeling, at least among myself and those with whom I interacted, that we were experiencing something special. It was a feeling as though, by reaching a critical mass of interesting, intelligent, and thoughtful people, we had ignited some sort of chain reaction. There was optimism in a way that I haven’t really felt since the new year, and I was reminded of the great World’s Fairs of yesteryear, when the planet’s great minds would all congregate and unveil their collective vision for the future.

There were sad moments as well, such as when John Green brought up the late Esther Earl in his speech, and was compelled to leave the stage because he broke down crying. There were reminders that they were many who had wanted to but could not attend for one reason or another. But even these were tempered by optimism and hope. Esther, we were told, received joy in her final days from gatherings of friends such as this, and those who could not attend were present in spirit, aided by live commentary and occasional streaming from us. The tone was overwhelmingly positive.

The last time I attended NerdCon (NerdCon: Stories in 2016), it turned out to be an inspiration for me, in part spurring the creation of this very blog. I do not yet know what the result of this year’s attendance will be, but I can state categorically that I left with a far better feeling about the world than when I arrived, which, I believe, makes this year’s attendance a victory.

Nailing the Colors

“Throw your soldiers into positions whence there is no escape, and they will prefer death to flight” – Sun Tzu, The Art of War.

Pardon the French

I often find that the hardest part of traveling for me is making the actual decision to commit to traveling. I mean, actually getting places is hard too, doubly so if I have to go through some kind of screening, seeing as how my medical devices, being both electronic and attached to me, set off alarms at every checkpoint, but over the years I’ve grown used to this.

The hardest part of traveling is determining whether this particular event is worth putting my metaphorical money where my mouth is. Not because money, or even travel time, are acutely scarce in my case, but rather because travel, especially in my case, requires a great deal of planning, and entails a considerable health risk.

The trouble with galavanting across the globe lies in the basic physiological fact that my body, unlike most, is not medically self sufficient. Simple sustenance is not enough for me to stave off death; I require a constant and complex life support regime to travel with me, with replacement and backup parts. Certain aspects of this baggage must be refrigerated, all of it requires special hazmat disposal, and from time to time, I still need to cease my activities in order to plug my cyborg components into a wall socket.

In addition to all of this routine hassle, I also must remain vigilant about the very real possibility of a more acute crisis. With increased activity and exposure to heretofore unknown pathogens comes an increased risk of medical catastrophe. And being far from my home and those doctors that are most familiar with my unique conditions amplifies the likelihood that, if something does go wrong, it will become critical.

I am a person who tends to overthink. I like to have the complete information before making a decision, and I like to take my time in doing so. When faced with uncertainty, I am broadly inclined to hedge my bets. A lifetime of chronic illness has taught me great appreciation for the value of playing one’s cards conservatively. This is, after all, the nature of medicine. Err on the side of caution. Prevent rather than cure. Rest, recuperate, and live to fight another day.

Yet this mindset is rather incongruous with modern travel. Traveling requires visas, reservations, tickets, invitations, and scheduling, all of which require commitment. One has to be able and willing to certify that they will be in a certain place on a certain day for a certain purpose, regardless of whatever extenuating circumstances may crop up between now and then. There is no option on airline bookings, or hotel reservations, to say “Yes, I will be there on February 24th with two other guests, unless of course one of us has a major health crisis or somesuch calamity.” Rather, it is “I will be there on February 24th with precisely two others, damn the torpedoes.”

This oversight seems to stem from the mistaken assumption that I have control over my life inasmuch as scheduling is concerned. That perhaps I was dealt a poor hand to begin with, but now that I have, it is solely my power to determine how I play my hand. This is absolutely not the case. I have no more control over the timing of my health problems than the average American does over the use of the US nuclear arsenal in an international crisis. That is to say, I can make my wishes known to the powers that be, and I can, on occasion, take indirect action to influence the overall outcome, but on the whole, my role is purely reactive.

In truth, I think this is part of what is so exhilarating to me about travel. Even in something as mundane as traveling across the state to visit friends, I am taking a gamble. I am nailing my colors to the mast, and committing to an offensive battle instead of waiting for my illness to strike first, and for me to react. Each one of these battles carries the distinct risk that it may be my last, and so I must choose my battles carefully.

With this in mind, I have decided to commit to making an appearance at NerdCon: Nerdfighteria in Boston this weekend. I plan to make myself identifiable with an oversized button of the compass-and-pencil seal. If my recently acquired and as yet untested means of button production work as envisioned, I will have some quantity of such buttons to distribute. In other words, come and say hi!

Discovery, Ho!

I like the feeling of discovery. Being able to create new things is awesome, but it’s also great to find new things that other people have made. I enjoy the sense of exploration in learning about new phenomena and places. This joy of discovery is the main reason I love learning in general. Even when, for example, in the field of history, there is very little “new” to be discovered, there is still the possibility of unearthing a novel correlation or interpretation that can challenge the way we understand the world around us.

This week, my attention has fallen on the online scavenger hunt being arranged by John Green of Vlogbrothers (and many other things). The actual experience is very spoiler-heavy, and so I will do my best to avoid giving too much away for anyone who is interested on following through. The place to start is the Vlogbrothers YouTube channel. As of writing, the latest two of John’s videos (but not Hank’s, who allegedly, is just as clueless as the rest of us) are a part of the puzzle. There are plenty of hints in the comments section, but be warned, there are also spoilers.

The project is early enough that it’s not entirely clear what the endgame is here. There is much speculation, and circumstantial evidence to support it, that this whole charade is a build up to the release of a new book. Others have suggested that this is a fun side project to bring the community (known affectionately as “Nerdfighters”) closer together.

What is apparent so far is that the main nerve center appears to act as a sort of “virtual speakeasy” for dedicated followers, with the answers to the weekly riddles serving as passwords. This is a neat idea for a community as large as Nerdfighteria, as it acts as an effective barrier to spammers, trolls, and complete outsiders, while not being exclusionary to those who are genuinely interested.

Of course, debates over “spoiling” the passwords for others, particularly in the YouTube comments of the videos where the riddles are provided, have already sprung up, with strong arguments both for and against making it easier for others to find and gain access. Riddles have been criticized for being too region-specific. Current members are already looking to the future with dread as more and more Nerdfighters crack the puzzle and start pouring in.

More than anything, however, is a sense of excitement. Some are merely excited to have cracked the puzzles. Others are excited for the possible release of a new book, or else to determine where the remaining riddles, and the ongoing series of cryptic hints by John and his co-conspirators, lead. Still others, such as myself, are merely excited to be present. To take part in this massive story, wherever it leads, and to share it with like-minded community members.

The atmosphere is reminiscent of that of yesteryear’s NerdCon: Stories, arranged and attended by much the same group. Recounting that experience on this blog has been on my list, and given these new developments, will likely be moved up in my priorities. Suffice it to say, however, that the feeling is good, if somewhat strange. There are plenty of casual obscure references which I do not understand, and plenty more that I do. It is clear that, even this early, there is a solid sense of community, something which I find welcome and refreshing with all the talk of being divided going on in the world.

I do not know what will come next in this project. But I am excited to find out. In the meantime, Don’t Forget To Be Awesome.